Digital Legacy Conference News
The Digital Legacy Conference – 17th June 2023, Press release. Download this press release (Download Word doc) or (View Google Doc)
The Digital Legacy Conference will return as a face to face event this year and will be delivered during the 18th European Association of Palliative Care World Congress (EAPC2023).
Digital Legacy Conference 2023 (DLC2023) attendees will learn about emerging best practices in areas relating to digital assets planning and digital legacy safeguarding. The event will cater for 148 people and is free to attend for all EAPC badgeholders.
The conference will take place on Saturday 17th June in the Van Cappellen Zaal room. Doors will open at 8:30am, the conference will start at 9am and conclude at 12pm.
Why this conference is important
Modern day, communication technologies are changing the world. The way in which we live, the ways in which we plan for death and remember our loved one’s is increasingly moving into the digital realm. Health, social care and palliative care professionals need to adapt practice, policies and procedures to better support society with this ever-increasingly important area.
What to expect
The Digital Legacy Conference examines society’s attitudes and behaviours in relation to technology, end of life planning, death and bereavement. The conference’s goal is to empower palliative and end of life professionals to better understand this emerging space and adapt ways of working to embrace it.
Who is the Digital Legacy Conference for?
The Digital Legacy Conference is for those involved in care planning, social care, healthcare, palliative, hospice and bereavement professionals. It is also relevant for policy makers, technologists and academics working within this sector.
Nilay Erdem, Facebook Stakeholder and Engagement (EMEA) speaking at the Digital Legacy Conference 2019, EAPC 2019 in Berlin, Germany.
Call for abstracts / speakers
The call for abstracts has now opened. You can submit an abstract for consideration by clicking here. The closing date for abstracts is the 20th April.
Invited speakers
The following invited speakers will be sharing insights and experiences at this year’s Digital Legacy Conference.
- Dr Ros Taylor MBE (Medical Director at Michael Sobell Hospice)
- Amarachukwu Callistus Nwosu (Senior Clinical Lecturer in Palliative Care at Lancaster Medical School & Research Lead (Marie Curie Hospice Liverpool)
- Sarah Stanley (Research nurse at Marie Curie Hospice Liverpool)
- Professor Mark Taubert (Clinical Director at Velindre University NHS Trust in Wales & Founder of TalkCPR)
- James Norris (Founder of the Digital Legacy Association & MyWishes)
Who organises the Digital Legacy Conference
- The Digital Legacy Conference is organised by The Digital Legacy Association. The Digital Legacy Association is a global organisation dedicated to raising standards and developing best practices in areas relating to digital assets planning and digital legacy safeguarding. Previous Digital Legacy Conferences have taken place at UCL Partners (London), Siena College (New York), EAPC (Berlin), St Joseph’s Hospice (London) and online from Michael Sobell Hospice (London) for EAPC in 2021.
- This year’s Digital Legacy Conference is being delivered during the 18th European Association of Palliative Care World Congress. Under the theme “Equity and Diversity in Palliative Care”, EAPC2023 will draw attention to the utmost need and goal of creating equity of fair access, opportunity, and advancement in palliative care for all people in need of this care.
Volunteer
If you are able to volunteer your time in Rotterdam please do get in touch
Reserve a ticket
You can register for an EAPC ticket by clicking here
Location (details and map)
This year’s EAPC and Digital Legacy Conference will take place at De Doelen in Rotterdam. The Digital Legacy Conference will take place on Saturday 17th June in the Van Cappellen Zaal room. Doors will open at 8:30am, the conference will start at 9am and conclude at 12pm (Location details).
Photo of the Van Cappellen Zaal
To learn more visit www.DigitalLegacyConference.com
Ahead of the Digital Legacy Conference 2023 we have made a number of videos live from the Digital Legacy Conference 2021. The DLC2021 took place as a online only conference due to COVID-19, social distancing restrictions. It featured as part of EAPC2021. To watch 12 short, snippet videos click here
Plans for the 2023 EAPC World Congress are well underway. This will be their first in-person congress in 4 years and it will take place in Rotterdam, The Netherlands from 15 – 17 June 2023. Registration is now open on the congress website.
*The videos from this year’s conference can now be accessed (ticket holders only) by clicking here
Recap: The Digital Legacy Conference 2021 ‘PalliCovid & Exploring New Dimensions’
The importance of our digital lives is increasing. Personal, digital photos and videos are often saved behind password protected devices. The monetary value of purchased media, online only services and digital assets is also increasing. Managing and transferring digital possessions and online services upon death is becoming fragmented and complex.
It is important that professionals are able to assist patients, families and those they serve with relevant support and advice. The Digital Legacy Association argue that ‘digital assets planning and digital legacy safeguarding should form a holistic approach to advance care planning’
The International Digital Legacy Conference 2021 will take place on the eve of the European Association of Palliative Care World Congress 2021 (EAPC 2021). This year’s Digital Legacy Conference will be streamed live and be featured as part of EAPC 2021. The live stream will be accessible for free with an EAPC ticket. For those who are not attending EAPC 2021, a Digital Legacy Conference ticket can be purchased for £20 when visiting the Digital Legacy Conference website or directly from this ticket link.
This year’s conference will be chaired by Dr Ros Taylor MBE & James Norris.
Full Programme – Now available to stream
4:00pm: Welcome to the new world, a new world in which we all inhabit – Dr Ros Taylor MBE, Palliative Physician. Former Clinical Director at Hospice UK, Medical Director at Michael Sobell Hospice and Harlington Hospice. Trustee at Nightingale Hammerson Care Home & James Norris, Digital Legacy Association, MyWishes & Michael Sobell Hospice (UK)
4:20pm: Nothing We Do Online Will Exist After We Die and That’s Ok. – Dr John Troyer, Bath University (UK)
4:40pm: Life, death… Shouldn’t we talk about it with students? Issues arising from the creation of an online platform for the French medical and school staff – Nicolas El Haïk-Wagner & Caroline Tête, French Society for Palliative Care (France)
5:00pm: Netiquette for Dealing with Illness, Death, and Grief: Has COVID-19 impacted the rules? – Dr Carla Sofka, Siena College (USA)
5:20pm: The posthumous privacy paradox: Privacy preferences and behavior regarding digital remains – Tal Morse, Hadassah Academic College & Michael Birnhack Tel Aviv University (Israel)
5:50pm: “They were part of the family” – a look at grieving for a pet online. – Stephanie Owens, Cochrane (UK)
6:00pm: Digital Executor®: Unraveling the New Path for Estate Planning – Sharon Hartung, Captain (Ret’d), PEng, TEP, is the founder of Your Digital Undertaker (Canada)
6:20pm: Digital afterlife and the spiritual realm – Maggi Savin-Baden, University of Worcester (UK)
6:40pm: Why creating a digital shrine for my Dad helped me with my grief. – Sandy Weatherburn, Social Embers (UK)
7:00pm: Designing for death, evolving DeadSocial into MyWishes – Marcos Sebastian, MyWishes Design Lead (UK)
7:20pm: Living beyond death; who cares? – Dr Erica Witkamp Professor Care for Family Caregiving, Faculty of Nursing and Research Center Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands. Rob Bruntink, Journalist, Owner of Bureau MORBidee, The Netherlands & Judith Rietjens, Associate professor, Dept. of Public Health, Erasmus University Medical Center (The Netherlands)
7:40pm: Designing for Choice at the End of Life: does COVID-19 Shift our Collective Experience of Death Online? – Dr Stacey Pitsillides, Northumbria University (UK)
8:00pm: Cryptocurrencies, Cryptoassets, and Inheritance Planning – Pamela Morgan, Empowered Law (Canada)
8:20pm: Palliative Pandemic and its Digital Divides – Professor Mark Taubert, Cardiff University (UK)
8:40pm: Digital Legacy and the idea of life as a work of art – Steve Fuller, University of Warwick (UK)
9:00pm: 2040: Death, bereavement and digital legacies – Maneesh Juneja, Digital Health Futurist (UK) *Keynote
9:40pm: Closing remarks – Dr Ros Taylor MBE, Palliative Physician. Former Clinical Director at Hospice (UK), Medical Director at Michael Sobell Hospice and Harlington Hospice. Trustee at Nightingale Hammerson Care Home (UK) & James Norris, Digital Legacy Association, MyWishes & Michael Sobell Hospice (UK)