Digital Legacy Conference News
Ahead of the Digital Legacy Conference 2019 and EAPC 2019 we thought that it would be a good idea to provide those attending with a recommended reading (and watching) list. This may help improve your understanding as to why digital assets and digital legacies are important in relation to advance care planning and palliative care.
What is a digital legacy and why is it important?
Joan Bakewell’s We Need to Talk About Death – My Digital Legacy (essential listening) https://www.bbc.co.uk/programmes/b09jf1zb
Support tutorials for the general public
The Digital Legacy Association’s online tutorials support the general public to make better decisions about their digital assets and digital legacy https://digitallegacyassociation.org/for-the-public/
Digital Asset planning and digital legacy safeguarding forming a holistic approach to Advance Care Planning
This article for the Royal College of Physicians examines why it is important for GPs, end of life and palliative care professionals to provide support within this emerging area https://rcplondon.ac.uk/news/your-digital-legacy-emerging-aspect-advance-care-planning
The Digital Legacy Conference 2019
The Digital Legacy Conference 2019 will take place at the 16th World Congress of the European Association of Palliative Care
As an EAPC badge holder you will automatically be able to attend. Those not attending EAPC will also be able to attend the Digital Legacy Conference. The scientific programme and a limited number of tickets (for non-EAPC badge holders) can be found here.
We look forward to seeing you in Berlin.
ONLY 66 DAYS TO #EAPC2019 … AHEAD OF THE 16TH WORLD CONGRESS OF THE EUROPEAN ASSOCIATION FOR PALLIATIVE CARE TO BE HELD IN BERLIN, GERMANY, 23 TO 25 MAY 2019, WE BRING YOU SOME SPECIAL POSTS TO WELCOME YOU TO BERLIN.
Today, James Norris, Founder of The Digital Legacy Association, welcomes you to the Digital Legacy Conference, which will address death, dying and bereavement in a digital world during the EAPC World Congress.
The Internet has changed many aspects of our lives. It has also changed the ways in which we view death, dying and bereavement and how we remember those close to us. This year, the 16th World Congress of the European Association of Palliative Care will welcome the Digital Legacy Conference. This annual conference addresses death and dying in today’s digital world. The conference will be free to all congress delegates and will take place on Friday 24 May in Estrel B with the reception starting from 18:15 ahead of a prompt 18:30 start.
We are currently living in a time of flux when many aspects of our lives are becoming digitised. Changes from the physical to the digital form include ways in which we communicate to ways in which we upload, store and save photos and videos (on platforms such as Facebook, Instagram, Youtube, Dropbox).
The sentimental and monetary importance and the value that society places on their online lives also appears to be increasing year on year according to various studies (Digital Death Survey).
The Digital Legacy Conference 2019 will aim to define the role of the palliative care professional in relation to digital asset planning, online support and digital legacy. Stories from hospital and palliative care wards and from patients will be shared. Speakers will examine the media’s gaze (how the media view society and represent their view in magazines, films etc),as well as attitudes towards death.The conference will also showcase how professionals are currently supporting patients within this area, concluding with a panel discussion on ‘How to better support patients and families with digital assets and digital legacy’.
After attending the 9th EAPC World Research Congress in 2016, I was inspired by the different forms of innovation and care provided by professionals globally. At the next EAPC World Congress in Madrid we presented two posters addressing death, digital assets and digital legacy and the response from attendees helped validate the need to explore these areas further and provide support globally. Soon after EAPC 2017, we assigned professional leads within different fields and regions.We are delighted that the new Americas lead and the clinical lead will be sharing their and their patients’ experiences at EAPC during this year’s Digital Legacy Conference.
Dr Mark Taubert, one of the speakers at this year’s Digital Legacy Conference.
Join us at this year’s Digital Legacy Conference in Berlin. The conference is free to attend for all those who have registered for the congress. A limited amount of tickets for those unable to attend EAPC 2019 will also be made available.Links
View the programme for this year’s Digital Legacy Conference here.
- View the video presentation of poster: ‘Hashtag #DigitalDeath – The Digital Death Survey 2017’.
- The Digital Legacy Association provides frameworks, training and best practice for professionals who address digital assets and digital legacy.
- Follow us on Twitter @DigitalLegacyCo
- Read more posts relating to EAPC2019 on the EAPC blog.
Join us at The Digital Legacy Conference at #EAPC2019
The 16th World Congress of the European Association for Palliative Care: ‘Global palliative care – shaping the future’ takes places in Berlin, Germany, on 23 – 25 May 2019. The Digital Legacy Conference takes place in room Estrel B on Friday 24 May at 18:30-21:00. Visit the congress website. Register here. View the full congress programme here.
This article was originally published on the European Association of Palliative Care website.
The Digital Legacy Conference will return to Europe for this year’s event. Last year the conference was hosted by Siena College in New York and we welcomed a diverse range of speakers ranging from a funeral director to those within the Policy and Legacy team at Facebook.
For our 5th, annual conference we will explore and help define the role of the palliative care professional in relation to the digital asset planning, online support and digital legacy. This year’s conference will take place at the 16th World Congress of the European Association of Palliative Care in Berlin on the 24th May. The Digital Legacy Conference will welcome 200 attendees on Friday night for a evening of innovation and discussion. The conference is free for all those who have purchased EAPC badges. Tickets will also be made available (for free) for those who wish to attend the Digital Legacy Conference but are unable to attend EAPC 2019.
We sincerely hope that you can join us.
This year The Digital Legacy Conference will welcome a diverse range of speakers from a multitude of different professions. The objective of the Digital Legacy Conference is to improve conversations and to both inspire and support professionals to better serve the needs of their clients, users, patients, loved ones and the bereaved.
“Please join us to learn about how technology is changing the way our society deals with impending death, loss, and grief from legal, funeral-related, psychological, and social perspectives”.
– Dr Carla Carla Sofka, Ph.D., MSW Professor of Social Work, Siena College
We are delighted to announce that this year’s keynote will be delivered by Shelby Lindblad (Product Designer at Facebook) and Kim Malfacini (Associate Manager of Product Policy at Facebook). Together they will explore the policy and product design behind Facebook’s Memorialization and Legacy Contact capabilities.
Shelby Lindblad is a Product Designer at Facebook working on issues related to memorialization. Prior to joining Facebook, she worked at Method, a global design firm with clients such as Google, HP, and the San Francisco Ballet. Her work has been recognized by Fast Company and the A’ Design Awards. Shelby graduated with a BFA in Communication Design from Washington University in St. Louis.
Kim Malfacini is Associate Manager of Product Policy at Facebook, the team responsible for developing Facebook’s Community Standards governing what is and is not allowed on the site. Kim focuses on stakeholder engagement, ensuring Facebook’s policies are informed by experts across the globe. Prior to joining Facebook, Kim served as Director of Public Policy for Sunrun Inc., the largest residential solar energy provider in the US, where she advocated for the rights of residential energy producers with state legislators and regulators. She spent two years in Benin with the United States Peace Corps, leading projects in environmental health and young women’s empowerment. Kim graduated Phi Beta Kappa from the University of California Los Angeles with a Bachelor of Arts in Global Studies.
“We look forward to welcoming Shelby, Kim and all of this year’s speakers, sponsors and guests to Siena College on Saturday. This is the first time that the Digital Legacy Conference will take place out of Europe and are expecting it to be the best one to date”.
– James Norris, Founder Digital Legacy Association, DeadSocial & The Digital Legacy Conference.
To view the full agenda and reserve a free ticket visit https://DigitalLegacyConference.com/speakers
20 years ago the Institute of Medicine stated that a good death is one that is “free from avoidable distress and suffering for patient, family, and caregivers, in general accord with the patient’s and family’s wishes, and reasonably consistent with clinical, cultural, and ethical standards.”
At this year’s Digital Legacy Conference we will examine how this statement can tranced across the technological divide as professionals, technologists and academics explore these areas within a digital context.
We are delighted to welcome Shelby Lindblad (Product Designer at Facebook) and Kim Malfacini (Associate Manager of Product Policy at Facebook) as this year’s keynote speakers. To read the full agenda click here
The Digital Legacy Conference is an international, not for profit conference ran by the Digital Legacy Association. The conference brings together professionals, educators, patients, researchers and those with working within relevant fields in a melting pot of creativity, science and social care. The Digital Legacy Conference celebrates innovation, best practice, research and thought leadership within digital assets, digital estates and digital legacy.
We are delighted to announce that this year’s Digital Legacy Conference will take place at Siena College in Albany New York. The conference is also featured as one of the many ‘Reimagine End Of Life. Reimagine End of Life explores big questions about life and death between the 27th – 3rd November.
We have put together a press release for this year’s Digital Legacy Conference. Feel free to copy and paste the copy onto your website. Alternatively download the text (as a .doc) and use the images provided when referencing the Digital Legacy Conference. If you download the press release it will save as a .ZIP file. simply open it and use the media provided. To download the press release click here.
The Digital Legacy Conference 2018
Press Release (August 2018)
We are spending an increasing amount of our lives online. The sentimental and monetary value of the content we upload, share and purchase is increasing year on year….But what happens to our online world when we die?
The Digital Legacy Conference explores societies attitudes and behaviours around death, dying, bereavement and the internet. This annual conference is ran by the Digital Legacy Association who operate from London. This year’s conference will examine how a variety of professions such as the legal, social care, healthcare and funeral care are changing their practice in order to better support the general public. This year’s conference will share best practice and recent research whilst asking questions about how these areas can improve and evolve.
On the 27th October 2018 the Digital Legacy Conference will take place at Siena College, Albany New York. This will be the first time that the conference has taken place outside of Europe and the Digital Legacy Association are looking forward to working with Siena College’s social care department to address this increasingly important area.
Siena College is a private, co-educational liberal arts college in the Franciscan and Catholic tradition. Siena is committed to offering the Education for a Lifetime for a new generation of leaders eager to create a more just, peaceful and humane world.
The Digital Legacy Conference call for speakers is now open. Those with relevant professional experience, case studies, research or stories should apply to participate at: http://www.digitallegacyconference.com/speakers
We also encourage policy makers, technologists, the legal sector and all those who support the general public with estate planning, palliative care, bereavement and end of life to attend.
More information and free tickets to attend the conference can be reserved at: www.DigitalLegacyConference.com
Click here to download The Digital Legacy Conference Press Release for your website or blog – October 2018